Update

Two big seizures last night. Now we are in the hospital getting a 24-48 hour EEG done so that the docs can figure out what is going on. If she has seizures tonight, we get to go home tomorrow, probably with seizure meds. If not, we could be waiting here up to 3 days. So, oddly enough, tonight we are hoping for seizures. Good times. Watching soccer and track (GO ETHIOPIA!) on TV, eating turkey sandwiches, and reading email. Life is not all bad at the moment….

{ 21 Comments }

  1. Sorry to hear things escalated to this, but praying they find out the baseline cause quickly.

  2. Ok. Our family is praying right now. God be with you all.

  3. Jennifer O. says:

    Hi everyone,

    I am keeping posted via your website. Thought it would be easier for everyone. I have been praying consistently since Thursday.

    My sweet new niece, Auntie Jen says “hi”. I wanted you to know that I was in the hospital when I was 12, 23 years ago on July 8th. I broke my back then and was paralyzed from then on. A lot changed for me, but God did not change. Our Savior is so good to help us through confusing times.
    I am praying that Jesus will comfort you and helps you through whatever the circumstances.

    Love to all,
    Jim, Jennifer and Eric

  4. Agreeing with you in prayer.

  5. Send all my good thoughts your way!

  6. Praying this will give you the answers you need. I’m surprised they have not started her on seizure meds.

  7. Joanne,

    The doc wants to make sure he knows what he is dealing with, and I appreciate him being careful…from all the comments here I am seeing that seizure meds have their own issues…

    Mary

  8. Still praying for you and her and the whole gang!

  9. Keeping you in my prayers, Mary!

  10. Praying for you all, Mary.

  11. Multi-taskingmom says:

    Praying Mary!

  12. You are in my prayers.

    As I read updates about your daughter in contrast to the updates from your sister and mother in Ethiopia, I can’t help but think of the medical care in third world countries and in many places of our own country.

    Seizures are very scary and I worry about what happens to children who do not have parents who understand that they need to go the hospital. And what happens when there is no hospital to go to, or the hospital is not equipped with an EEG? Or, if there is a hospital and you have no money or insurance? And what about children whose parents cannot stay with them because they have to work or risk losing their jobs, and therefore would not have money or insurance.

    This needs to change.

    I am praying.

  13. I am thinking of you guys!!!

  14. It’s an odd thing to be wanting a seizure isn’t it. When I went through my seizure disorder I had a video EEG for 8 days, all the while hoping for a seizure. I pray that your time will be peaceful.

  15. Hugs!!!!

    It sounds like you are in good hands. I pray that they are able to find the cause and treat it effectively.

    Give her a hug and a kiss on the cheek for me.

  16. Praying Mary! I hope that the dr. is able to diagnose the problem soon….living in “limbo” is not at all fun.
    Sending good thoughts your way!

  17. Oh gosh, I know how that is. Hoping you get what you were looking for!!

    Steph

  18. I am praising the Lord for placing your sweet girl at exactly the place He needed her to be so that she could get the care He wants for her at this time. What an awesome God we serve! He is there with you and her; He will not leave you nor forsake you.

    He shall cover you with His feathers,
    And under His wings you shall take refuge;
    His truth shall be your shield and buckler.
    You shall not be afraid of the terror by night,
    Nor of the arrow that flies by day,
    Nor of the pestilence that walks in darkness,
    Nor of the destruction that lays waste at noonday.
    A thousand may fall at your side,
    And ten thousand at your right hand;
    But it shall not come near you. Psalm 91:4-7

    Blessings and prayers,
    Janera

  19. Oh Mary!!! We are PRAYING with you!!!! Keep us updated!
    with love and hugs!!!!! Wish I could bring your family a meal and pray at your side!!!!

  20. Thanks for the response Mary. What a great doctor you must have. Yes, that is indeed true about seizure meds. They can be personality alternating and a whole bunch of other things. But on the other hand, watching a child continue to have seizures is also difficult. I didn’t realize that they might find a “reason” for seizures (outside of the big things like brain tumors.) Our family experience has been that we have no idea and have just had to treat the seizures.

    With Ethan, he does have other issues, and if the clinical diagnosis they’ve given him is correct, it is common to have seizures.

    I hate to hear your daughter having more seizures, but I hope there is just enough to give the doctors some answers and no more!

  21. Thinking of you. I can’t imagine the feelings you are having, so I will keep my prayers in flow.